With the discharge of Evelyn's mom and my return to work, today was the start of the tougher part of her time at the hospital. Sure we still have 24hr a day access as her parents, and trust me, if not for the necessity known as a paycheck and showering I would be there constantly as would her mother. However the reality is that we both have to get back into a routine. First note for today, mom was released from Barnes on Friday which is a big step. Blood pressure will probably still be an issue for a while and it will contribute to the debilitating migraines that she has dealt with recently, but she is home for a little recovery time. We did get some good news regarding her leave from work as well and she was up moving around more today. On to Evelyn, she gained about 40 grams in the last 24 hours so we are starting to see a bit of a bounce back. She only had 1 episode today until they switched her to the nasal prongs which seem to cause her to have a little more trouble. I got to hold her for an extended period on Friday evening and it was one of the most amazing things to date... to think that she is smaller than the soda I drink almost daily, and she is a person. She has a ton of personality. Nuzzled up into my chest and was making very cute little noises during that time... but was also so relaxed and at ease that she decided it was nap time, which contributes slightly to the apnea bouts she has and was a little unnerving but it was still a great time. I am amazed daily by this little champ and hope that we continue to have days like yesterday even if it means less Cardinals baseball for dad. The best part of the day was her looking up at me at one point with her bright blue eyes and then putting her head down again... that moment reminded me of how great it is to be a dad. Little girls are the best, those that have seen the picture know shes already got daddy's finger, even if her tiny hand can barely reach around it.
Love you Evelyn.
Tim
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