Today is the goal day for mom to go home... however we are having some slight issues that may be hindering that a bit. Mom is having a migraine issue blended in with the already present blood pressure issue. Otherwise Evelyn is doing pretty well today. She was given an NSAID to help with a slight issue related to being a preemie that likely has something to do with the bradychardia and apnea issues. Hoping for her sake that we start rebounding weight wise as she is now down a total of 140 grams (weight at birth was 840) which is a higher percentage but normal. The nursing and support staff to this point have been amazing to us. Right down to calling us a couple of times at night during shift changes to keep us informed of the little things with our little girl. We are realistic now more than ever about the fact that after today we won't be here 24/7 and that these folks are going to be our conduit of information and will go far beyond the call of duty to keep us up to date. We will have a dedicated line phone number for parents and a 4 digit code so we can call for information at anytime, or even to just talk to her nurse on duty about her day. Does it replace us being here at her bedside? Absolutely not, and those close to both of us know that we will be here likely more than any estimate I could give. Overall she has had a very good 36 hours after a rough 3-4 the other night... I will take those odds and differentials. The most painful part of today is that we know that we have a 4 day old... normally at this point we would be preparing for a life at home with her, and we know she isn't coming with us today. Were we prepared for her to come home... no, but it is still not the way you want to leave. I have a feeling it will be a long and quiet car ride, followed by a likely return trip much earlier than planned.
We both want to thank everyone who has come by and sent well wishes for all 3 of us. It has been very nice to see that so many people care about our tiny little person. I did post 1 picture of her to both of our Facebook pages so she could wave hi to everyone and thank them personally. I am sure that we will continue to post them periodically to show her progress but, especially considering the number of monitors attached to her, we will likely limit that type of access other than for family.
Love you Evelyn, your big sister says hi on her way to Tennessee.
Tim
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